CVS is a disorder that not many people have heard of, But when you have the illness, and you belong to a group of people who have it, or look after someone who does have it, you realize its more common than not. So why is it then that doctors have not heard of it or why do they seem to think that patients that come into the ER are drug seekers. This is disorder can be very debilitating, as well a person may not look ill all the time.
Please take a look and get to know what CVS is in the link below.
People who have this can range in age from infant to being diagnosed at an older age. People who have this feel very very alone, this illness is also an invisible illness as you can feel great one minute and then the next your feeling horrible. It can be very debilitating.
I started a Facebook group 6 years ago, https://www.facebook.com/groups/25359810136/ as I was very ill from this disorder myself. I started it to keep my friends and family up to date with my illness and now its has 3,533 members, people who suffer or they are supporting people who suffer or they are parents of children who have CVS. Having CVS myself I cant imagine being a parent and having to watch a child go threw this.
Im still trying to figure how so many people have this illness and doctors still are unaware of this disorder and are telling the patient that they are making it up or that they are anorexia/bulimia or that they are seeking drugs. This angers me. Why would anyone want to suffer such a disorder.
Im so glad that I started the group on Facebook it’s a great place for people to connect and not feel so alone. Whether it be the person who is suffering or a parent or loved one. Sometimes it brings tears to my eyes when I get a personal note from one of them telling me how this group have changed their lives and how they no longer feel alone.
I pray that each and every person who suffers this disorder are able to get a cure for this disorder and not just having to take medication to help with the symptoms. One may feel great and then all of a sudden get a really bad migraine or severe stomach aches or start to throw up for hours or even days at a time. Most people suffer severe migraines. Which cause vomiting as well.
I pray for each and everyone who suffers this horrible illness.
I chose to blog about CVS to bring awarness to the public. I hope you learned something new that many suffer and when you see someone who may be under weight or ill all the time dont assume that they want to be this way or that they are making themselves ill to be thin, maybe ask or dont assume that you know. Knowlege is powerful.
I’m also the administrator of the Facebook Page, mentioned in the above. If you do not suffer but would like to join please add yourself you will be more than welcome. Thank you for reading my blog and please feel free to follow my blog.